tag:blogger.com,1999:blog-3324536562204251762.post9132208829540991777..comments2023-06-12T11:01:16.463-04:00Comments on Healing, Empowering and Thriving: Adam's Sox...Phil Dzialohttp://www.blogger.com/profile/04150881545903849250noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-3324536562204251762.post-42908916965972937422011-06-28T15:09:46.388-04:002011-06-28T15:09:46.388-04:00Inflatable wheelchair cushions--do you have/use th...Inflatable wheelchair cushions--do you have/use them?<br /><br />For sun/heat--umbrella works best, light in color, keep it close to the head so people behind do not have an obstructed view. For overheating, water on thin skin will cool the blood fastest. Put water on towel and put towel on neck. Also, portable fan, battery operated, to evaporate sweat/water. If you can find a novelty hat with the fan in it, those aren't bad. Also, those neck coolers with the fan in it help.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3324536562204251762.post-54074747155150378902011-06-26T11:25:31.519-04:002011-06-26T11:25:31.519-04:00It was a great day, Mel, with the exception of the...It was a great day, Mel, with the exception of the heat, the sun, the dehydration, the pain in Adam's back and sacrum, the sweats, the lack of real handicap bathroom facilities and the eight dollar which I had to share with Sharon and Adam. The good things were......Phil Dzialohttps://www.blogger.com/profile/04150881545903849250noreply@blogger.comtag:blogger.com,1999:blog-3324536562204251762.post-50186726959501890272011-06-26T01:25:13.368-04:002011-06-26T01:25:13.368-04:00Dear Phil,
I so loved the photos, they were truly...Dear Phil,<br /><br />I so loved the photos, they were truly MAGIC! Loved every single one.<br /><br />The feeling of not wanting to do something again EVER, I can so relate to....I know how much effort that is, and I think you guys are truly amazing. Although I have to say that the Red Sox looked pretty truly amazing day and I like Eric was very proud of you all.<br /><br />Your line "Do you both have to been in the bathroom with him?" Yes, dumbass..." was a total classic.<br /><br />I really think you should write a book, on your one liners with special needs, as, well I wouldn't mind a copy!<br /><br />Totally loved the post and really loved your family farewell photo.<br /><br />Sending you a special afterwards hug xxxoooxxx<br /><br />Mel<br />xxxOatie - IWillSkate on Icehttps://www.blogger.com/profile/01239644838455889910noreply@blogger.comtag:blogger.com,1999:blog-3324536562204251762.post-89549854176156738052011-06-24T02:43:34.659-04:002011-06-24T02:43:34.659-04:00Despite the fatiguing aspect I was very proud of y...Despite the fatiguing aspect I was very proud of your endeavor, a "day of days" (movie quote).<br />Absoutely fantastic, thanks for the post.Eric Fischerhttps://www.blogger.com/profile/02471331868560587898noreply@blogger.comtag:blogger.com,1999:blog-3324536562204251762.post-38806704631779793112011-06-23T14:28:20.285-04:002011-06-23T14:28:20.285-04:00Well, I think that we should send our kids to summ...Well, I think that we should send our kids to summer camp so that we could share the experience with others......Phil Dzialohttps://www.blogger.com/profile/04150881545903849250noreply@blogger.comtag:blogger.com,1999:blog-3324536562204251762.post-69721826923834710492011-06-23T09:15:26.769-04:002011-06-23T09:15:26.769-04:00I relate all too well to the amount of effort it t...I relate all too well to the amount of effort it takes to do this sort of stuff with our kids.Clairehttp://severedisabilitykid.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-3324536562204251762.post-6828110591264600672011-06-22T07:33:45.592-04:002011-06-22T07:33:45.592-04:00Thanks for the comment, Sue. Get my sense of humo...Thanks for the comment, Sue. Get my sense of humor from my son, Adam. He laughs at the most inappropriate stuff and is totally irreverent...he's a great teacher!Phil Dzialohttps://www.blogger.com/profile/04150881545903849250noreply@blogger.comtag:blogger.com,1999:blog-3324536562204251762.post-57763746064900684092011-06-22T06:31:45.687-04:002011-06-22T06:31:45.687-04:00Wonderful story! Being an avid Red Sox fan, I can...Wonderful story! Being an avid Red Sox fan, I can understand why you wanted Adam to relive the experience. But, it was no easy task - thank God you have such a great sense of humor. I bet it wasn't so funny at the time! You are an amazing family.<br />Susan ChristianoAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3324536562204251762.post-69710951701010700422011-06-21T14:55:49.672-04:002011-06-21T14:55:49.672-04:00Anonymous: Her name was KIM. If we also went to ...Anonymous: Her name was KIM. If we also went to the Bruins parade at 11:00 we would all be hospitalized. And a big YES to the beer at homeplate (at least a sip to prevent dehydration). Adam is 25 after all, not that that matters. He gets whatever he wants....one way or another.<br /><br />Richard: I'm not going to shave until you get Tim Thomas to come to our house with the Stanley cup for pictures. By the way, not shaving because of your "promise" will piss my wife off.Phil Dzialohttps://www.blogger.com/profile/04150881545903849250noreply@blogger.comtag:blogger.com,1999:blog-3324536562204251762.post-75623593917381636212011-06-21T14:40:14.877-04:002011-06-21T14:40:14.877-04:00Wow Adam!...looks like YOU had a great time...your...Wow Adam!...looks like YOU had a great time...your Dad never mentioned who your favorite player is (the one just feet away ont he playing field who engaged you)...and how come yourparents didn't take you to the BRuins parade too, I mean you are a hockey palyer as well????<br />:)<br /><br />nice pics...did you get a beer under homelpate????Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3324536562204251762.post-484098795535201172011-06-21T10:13:31.632-04:002011-06-21T10:13:31.632-04:00Phil, a few thoughts. Need I remind you that it w...Phil, a few thoughts. Need I remind you that it was a French Canadian Bruins fan who alerted you to the Sox game time change last Thursday on your FB wall. <br /><br />Funny post and great pics, but you and your family were definitely out of your comfort zone, and I can relate to it from one aspect. First of all, I am a Sox fanatic but rarely go to Fenway because of my crowd phobia. It was really a big deal for me to attend Bruins rally, but it was historical moment and I wanted to be there. I guess I do a lot better with 1.5 million than 35,000 people. I also have recent enough memories of the ordeal it can be traveling with someone totally dependent (babies and children),but our society thankfully has accommodated us with diapering facilities for little tikes, but I guess still lagging when it comes to total care adults with special needs. Not that I am more thoughtful than any of your other readers, but I am a nurse by profession, and I wondered about the toileting and changing accommodations for Adam prior to your trip. In retrospect, wish I had said something, but I did not want to contribute to you changing your mind as you were already annoyed (more accurately pissed) with time change. With regard to your “blindsiding” request for bathroom facilities and accommodations, I can’t believe this was the first time Sox have run into this situation. I guess we still have a long way to go. <br /><br />In deference to your not wanting to leave the Cape again, I will work toward having Adam getting a photo op with Bruins player (s) and hardware (trophies) down the Cape. Hockey is his favorite sport, and goalies his position. Will shoot for goalie and Stanley Cup MVP Tim Thomas. And besides, the Bruins owe you one. They need to make it up to Adam for disrupting his schedule and being bounced around in the back of the van.Anonymousnoreply@blogger.com