This is the world of PTSD (Post Traumatic Stress Disorder). In most cases, the trauma is focused on a single event (death), or a series of similar events (war); in the case of parents of severely disabled children, the trauma is a continuing event. It is not a past event which you can deal with in a number of therapeutic ways.
So for parents of very disabled children, life is about survival...your survival and that of your son/daughter. Life consists of avoiding everything which could impinge on that need to survive. You do whatever it takes, at whatever expense. There is no therapy nor medication to remove that imperative....you survive and out of this quest you slowly thrive. The road is dark, has many curves and the journey is always in the quest of the light...the quest does not end.