Everybody needs toys...big boys, little boys, boy doggies and boy fishies. Dad has toys: big screen tv's, Wii, laptops, tablets, smart phones. Ollie has his dead skunk, dead moose and a variety of other unstuffed animals with squeekers. My boy koi (not sure if koi has a plural and I'm to lazy to research) have new plants and summer foods.
Adam also has more toys than god. He has a bigger flat screen, home theater system. loads of Jim Carrey, Adam Sandler, and Mighty Ducks DVD's, also all sorts of media players, two ABR machines, nebulizers, suction machines, wheelchairs, bath lifts, and on and on. Certainly more stuff than god, but she probably doesn't need all this stuff, nor would she enjoy it.
Well, we just got another cool toy on the heels of a week of respiratory distress...very distressing to mom and dad. Adam collects mucous (yeah, that word!) in his throat and when he's tired or whatever, it stays there and migrates into his upper airways which in turns makes him feel like he can't breathe and then he hyperventilates. So, his doctor says this makes sense. If you almost drowned (25 minutes under water without breathing) and if you couldn't breathe well because your airways were full of junk, you would hyperventilate also (duh, she says). The good news, she says, is that his heart won't burst from the strain, but that he probably will pass out. After passing out, his CO2 will increase and he will come to....this is all very consoling to a set of PTSD'd parents.
Not an acceptable scenario, so something needs to be fixed!!
So, here is the new toy...The Vest: An Airway Clearance Device. Given the fact that mucous is good, at least so I'm told and given the fact that retained mucous and secretions in the airways isn't good, there is an answer which is neither invasive nor time consuming. A pulsing air generator, two hoses and a Vest. Simple. Pressure is created in the vest which then oscillates up to 25 times per second...no special breathing, nothing else. And, you only need to do the therapy twice a day for 10 minutes at a time. So. in a nutshell, it loosens old, sticky secretions, moves them up and out which produces an irritation and a good healthy cough.
So far, we have a boy with clear lungs, clear throat and mucous going in the right direction (down the throat to lubricate the olde bowel).
I like the new toy. Adam tolerates the new toy. He breathes more deeply and more clearly all day long. Hopefully, this will allow us to get rid of the nebulizer with the albuterol and symbicort. My boy, again, all natural, organic and no drugs!!! Love these toys and only $10,000.00. Thank you Mr. Insurance Company. Someone is making a hell of an effing profit on these kids.
I'm not getting a promotional kick-back!!! Just letting ya know!
Also, he didn't get the pink vest!
The guy is an idiot...but you get the point.. "Cough it up, kid!" |
What a great vest, good looking and only 10 grand!
ReplyDeleteI can't believe the cost of our kiddo's STUFF that they so desperately need. I don't even want to go there. I get too upset! Thank you Mr. Insurance Co. is right, the profit is not.
That is great that Adam can breath better and be drug free! Poor Cj is on so many drugs now, he really needs them to get through each day.
Hi Adam
ReplyDeleteMy name is Jenna and i came across your site. U are an amazing, courageous, strong and determined person. Brave warrior, Smilen Champ and an inspirational hero.
U will be in my thoughts.
I wasborn with a rare life threatening disease.
www.miraclechamp.webs.com I love it when other sign my guestbook.
Ummmm...Wow! That is quite the device. It's great that i works for Adam. Sometimes the toys are actually worth it. Love the "he has more toys than God" line...hee hee hee!
ReplyDeleteLisa: Yup, medical supply companies are the winners...we have had four already stop the diapers delivery because the profit margin was too small?
ReplyDeleteSmilen Champ: Thanks...on the way to your site.
Claire: Well, I always believed that the one with the most toys in the end will be the winner...I'm not sure of what, but...
Wow that' fantastic, really glad that it's helping Adam,, it actually looks really cool! That wwould be really brilliant for him to be drug free again. Love Mel xxx
ReplyDeleteThanks...we're almost there; it's been working like a charm. Best you you and Oatie and the whole clan!!
ReplyDeleteGiven that Bruins have an actual chance or winning Stanley Cup for the first time in 39 years,and you, Adam, were an aspiring Tim Thomas before your accident, how about a 2001 Stanley Cup shirt and/or hat or other hockey related toys? Looking forward to bringing you new toys when I visit.
ReplyDeleteHey Richard...sounds good. We are actually taking Adam to a Red Sox game next Saturday, the 18th....had to pay the SOX 60.00 for a reserved handicap van parking place next to the park..real supporters of the disabled? Someone is also supposed to get us on the field? Right...we'll see!
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