Adam Dzialo

Adam Dzialo
Our son, Adam Dzialo, age 30

Tuesday, January 31, 2012

Au cœur, sans cœur un vrai ... An Open Letter from Adam

If Dr. House finds your statements, assumptions or beliefs
about "personhood" to be stupid or annoying, he will mock you!
Judging by his face, someone is about to pout and whine.

Dear Blogger Au Coeur,

      I am having my dad, speaking for me, respond to your initial comments in huff post and further elaborated upon in your blog about what makes me a "non-person human."  My dad has been my voice and my personal warrior for the past thirteen years.  In the first 12 years of my life as a real person (according to the likes of Amber), somewhat useful to society,  Dad was there for me and helped me with my own battles of "coming into my own."  A near drowning interrupted things as we knew them, as I was underwater for 25 minutes.  I died and was resuscitated.  I am unable to speak, unable to walk, unable to move independently.  I can do nothing for myself and in your words I guess I'm a "turnip." Amber, in her blog told the world quite dispassionately that " My understanding of this situation is that persons who suffer some sort of traumatic injury significant enough to take away their personhood will never be capable of regaining it and are most likely to live in their current state until death."   This turnip is thriving because of the unconditional love from my parents.

       Your words and your echoes of Mary Anne Warren's convoluted and thoroughly shallow musings from the mid 70's hurt me and my parents very much.  I know that you were threatened by an emotional response from my dad to a very sophomoric and inane definition of personhood attributed to the illogical and flawed think of a Mary Anne Warren .  You should have looked to the words of JC Superstar first for guidance on personhood. You know "what you do for the least of my brethren you do for me."Matt 25:40 This dude valued the least of mankind as he viewed himself. Cool!

      While the blatantly unethical and inhumane propositions forwarded by this mindless philosopher (Warren) are inculcated and accepted into your arguments, you are clear to send me the message that I am "a non-person human" because I was diagnosed initially in a persistent vegetative state .  I assume that you have not studied  neuroplasticity in your undergraduate courses.  Your words and thoughts hurt me very much and reinforced and allied with the very forces that discriminate against the disabled. You say that I am not a person, I am not worthy of the same rights as every person, I am dispensable when measured against others.  You allude that dolphins and chimps are worthy of more rights that I am.   I guess that world view would place you in the same bed with utilitarian philosophy.

       I remind you that you are a  young girl.  I am older than you and so is my sister, Aimee.  Your implication that I am not a person offends me, my parents and every other severely disabled person and their parents.  You perpetuate stereotypes which are too numerous to mention.  I can forgive your lack of empathy because of your youth and absence of experience with the disabled.  You like philosophical argument for its own sake, regardless of who you shit on.  That's a very sad position for a young girl to take.  To consider that you even say your own child was not a person till three months old offends every parent I have ever met.  You are a young girl saying foolish things.  People who fail to see the consequences of their words lack empathy and human compassion.

       So, let's look at the lunatic ideas of Warren and how they apply to me:  I cannot prove consciousness to you or my ability to feel pain (does suffering the pain of contractures in silence qualify?), but I would probably laugh hysterically if I met you in person.  I cannot prove that I can reason and solve relatively complex problems.  I certainly am not self-motivated, except that I want to stay happy and enjoy my  existence.  Can't really communicate or demonstrate my self-concept, especially my awareness as part of a group with the exception that my disability makes me invisible to most people and the older I get the more invisible I become.  Thanks for making me feel whole, equal and worthy of life and deserving of the same rights as all people.  I have few medical complications except that my basal ganglia got fried underwater; that's kind of a big problem.

      My dad got shut down by you because he a strong man who would give his life for me and also that he swears a lot. I take it the young girl disdains a few swears.  Usually he can't finish a sentence without a fuck or goddamn being included.  He is incapable of rational ideological discourse when it comes to me because you see he loves me without condition and would give his life so I could live.  I would, of course, reciprocate.  So, by your criteria, I am a "non-person human".  My simple response which fails the polite test is "fuck you".

       Warren's criteria of personhood reflects a utilitarian view of people originally applied to fetuses and extended to perhaps younger children who have not yet attained personhood.    If a less than three month old isn't a person yet, you can kill 'em?  I think, little girl, it's called infanticide no matter how you bake it. You were pretty clear when you stated :"potential person, but most certainly not a person. Actually seeing day in and day out what an infant is like made me truly understand and agree with Warren’s argument."  Does that make my dog a potential person?  If so, he has more rights than I?

        None of Warren's criteria for personshood have any objective, scientific, peer-reviewed ways of measurement.  Determinations would be guesses by people who feel disabled people like me are dispensable...just kill 'em, what the hell, they aren't really people.  If they aren't real persons, we as a society have no responsibility for them.  This is pure, unabashed utilitarianism...if it doesn't advance the cause of our great society get rid of it.

       How the hell could you expect to confront any parent who has given their lives to care for a disabled kid or adult and not have them devolve into a psychotic rant...emotional responses are unacceptable to a child as yourself.   Warren's definitions are pure bullshit as are Pete Singer's.  Again Hitchens says: "That which can be asserted without proof can be dismissed without proof."  Oops, there go all your philosophical arguments.  They are the very same arguments which allowed for the mass involuntary sterilizations of developmentally delayed women in the 20's, arguments which justified Aktion T-4 in the late 30's and early 40's where over 250,000 disabled were killed, and support most genocidal and eugenic movements around the globe. Remember Rwanda where the Hutu extremists killed almost a million Tutsi and moderate Hutu people.  It was ok, they weren't really people.  Indifference to human life in any of its varied forms breeds a culture of the acceptance of the disposable human.


“We must not see any person as an abstraction. Instead, we must see in every person a universe with its own secrets, with its own treasures, with its own sources of anguish, and with some measure of triumph.” 

― Elie Wiesel

       Flawed philosophical arguments about what constitutes personhood contribute to every evil in our society: women were less people than men; gays are lesser people and (innately disordered ) compared to hetero's; poor people are less entitled than the wealthy; in China, males are valued more than females; and in the area of religions, everyone will not be saved unless they belong to your religion. Suicide bombing of innocents is ok, because the infidels are not really persons. Your thesis about extending Warren's flawed and ill-conceived definitions of personhood contribute to the evil and inequality of society.  Evil always has a philosophical root and ideological justification.

       Intelligence and personhood is over-rated,  " There is and has always been an unusually high and consistent correlation between the stupidity of a given person and that person's propensity to be impressed by the measurement of IQ."  (Hitchens, in Nation, 11.28.94)  Uncritically agreeing with Warren is tantamount to a vested belief in virgin births and miracles.  The unexamined life is certainly characteristic of many people.

       The thing which fries my ass the most is the absence of empathy for the stories of disability which you were confronted with.  There was no demonstration of compassion or empathy for these parents or their kids...all you desired was to babble about disingenuous philosophy.  How about reflecting about how the definitions of "non-person humans" deeply hurt parents of disabled kids.  You would frankly have to be quite ignorant to think that a visceral verbal response would not be forth-coming.  You would have to oblivious to believe that people would see an absence of empathy and obviously you would have to be quite ill-mannered that you could believe your words would not wound the hearts of the most vulnerable.  Defining "personhood" should die a quick death as these beliefs had led to most of the horrors of society perpetrated by people on other people: genocide, eugenics, racial purity, discrimination, and on.  All these social ills are predicated upon the belief that some people are better than other people, some people have rights higher than those of others, that some people are closer to god than others.
       So people spew an unfounded ideology, and invariably others must die and suffer.  It is the entitled who spew the ideology, always unproven and unprovable.  Let's euthanize a few more...they're not really people.

       My name is Adam.  I love my parents and my sister unconditionally; and they love me unconditionally.  They can see my soul in my eyes and I can see their souls.  I think at all times and ponder serious questions.  I go to places that you could never dream of...I am a person, I love and I feel.  Do you feel?  The only criteria for  personhood is life force flowing, chi, prana.  Let's cut the rhetorical crap of potential persons becoming a real person...who really fucking cares about definitions.  I am glad that my dad is free to swear on his blog and be totally impolite.  That's him and that's why I love him...his rage is about me...a real person, not an abstraction in some one's thesis or ethics committee.  I have a treasure in me if you take the time and effort to look and I work hard at life and you know something, young girl, I don't whine about hard things like housekeeping or getting a cold  on my blog.  Boohoo!

       These words are probably stinging, but I don't give a sweet fuck.  Again, Chris Hitchens, "I have a very thick skin and a very broad back, so I think I shall not complain of being called a redneck mutant, provincial philistine, backwoods dolt, or blood crazed religious maniac.  Insults come with the turf." (Not So Dumb Then?,  Hitchens, Mirror 2004)

       Also you screwed up by calling Wolf-Hirschhorn Syndrome a severe genetic disorder.  Check out www.blogaboutabloke.com written by a friend in Australia who has a young son with the syndrome and it will dispel your assumptions resulting from a lack of investigation.  You are a young girl and you need to apologize to the people who were wounded, devalued, dehumanized and offended by your ill-thought and archaic drivel.  Your view of personhood, my dear, is quite banal. Try writing about the treasure to be found in all life, not just life defined by your limited and narrow world view.

     I am a person! I am happy and fulfilled!  I would never trade places with you!


Phil Dzialo for Adam Dzialo
     
I am Adam...a person
I am Ollie...he's my friend, a dog...not a person
Got it!

This blog represents the opinions, only, of the author and his son...It has been well-researched,
and quotations are taken directly from the blog of the person whose ideas are being righteously challenged.
The post deals with the other's blogger's ideas and methods of presentation and is not intended to reflect on their 
character or reputation.

21 comments:

  1. I would rather nurture a turnip from seedling to maturity than tend to a pile of bullshit all my life. Thanks for that piece, Adam!

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    Replies
    1. Agreed. Your one-liner will be saved in my black book of uber-sayings...to be recycled at the proper time with proper attribution.

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  2. Well said..... Very well said.

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    1. Thanks, Sue...you, Scott and Noah are in mind frequently...exception people!

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  3. Thanks for speaking out, Adam. I don't have the stomach for responding to the non-person crap in any way right now. I'm glad you do!

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    1. Carolyn, I have gone bezerk with thinking about this topic and could do little but explode. The thinking and ideas were like wearing a crown of thorns till I decided to take it off.

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  4. Also, I know Professor Gabbard, who she references in the comments section. I've asked him to take a look and respond if he's so inclined.

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    1. Would be greatly interested in his perspective...as a member of the club.

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    2. I sent him the link, so we'll see. He lives in my city and our sons went to summer school together. We've talked a few times and his pre-disability perspectives are very different from the ones that he has now.

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  5. "Do you feel? The only criteria for full personhood is life, chi, prana."

    It had to be said, and you said it beautifully. Thanks for such a great read over my morning coffee.

    And @Claire - I loveeee that analogy. You are amazing, lol.

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    Replies
    1. Thanks, Helena Sue, I'm glad we could be a good addition to a good cup of coffee...this community of bloggers is truly life giving.

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  6. Thank you, Phil. This has made me weep, quite copiously, at my computer. I had carried the weight of Amber's comments to me for weeks, struggling against, not only her inhumanity, but also her claims of my own rudeness and reactions -- I'm not going to struggle anymore. I will, rather, be confident and link arms with Adam, with you and Sharon and all the rest of us. Thank you.

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    1. I join arms with your family and also other bloggers who have devoted so much energy to this issue. I don't believe minds or hearts were changed for the better...I do believe that the protest gave meaning to us and validated our kids importance. Thanks

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  7. My last couple blog posts were inspired by Amber's comments concerning "personhood" and I have left two way-too-long comments on her blog, so I can't deny that her words stroke a nerve and I've been mulling over the ideas and views that she subscribes to. In her reply to my comment, Amber raises the question 'what makes us human' and 'what separates us from animals', while pointing to our ability to reason. The more I think about that question, the more convinced I am that it is not our intelligence, reasoning and problem solving as those traits are also possessed by animals, but rather our morality, our ability to love unconditionally without expecting anything in return, our ability to empathy and compassion and self-sacrifice, our ability to rise above the rules of the wild where the fittest survive and care for the weak, our ability to have children to love and not just to pass on our genes and not reject our babies if they are "biologically flawed". Archeological findings indicate that certain prehistoric societies took care of their disabled members and I think that was as significant step that sets us apart from the animal kingdom.

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    Replies
    1. Erika, well stated, as usual. Your perspective always adds a dimension which is often lacking in this discussion. Your writing and thought always comes from the heart and is supported by a vast breath of knowledge. I honor that.

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  8. Great response Phil & Adam. I have only part of her blog post because I found myself wanting to punch her through my computer screen. But I will go back and read it again. I hate people that pretend they are philosophers.

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    1. I appreciate your comment and I join your frustration especially because of your commitment to your son, Ryley. Philosophy comes from the mind (I think)...our lives are directed by the heart. The latter is a much better place to drawn knowledge from and longer lasting resource.

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  9. Thanks for all the responses so far as the blog was a way for me to demonstrate my outrage at this bizarre thinking about personhood and disability; and, how, ideas can be enabled by ordinary people and become viral, unless good people protest loudly...thanks for joining voices.
    In search for how evil ideas become reality I ran across the concept of "the banality of evil".
    "Banality of evil is a phrase coined by Hannah Arendt and incorporated in the title of her 1963 work Eichmann in Jerusalem: A Report on the Banality of Evil.[1] It describes the thesis that the great evils in history generally, and the Holocaust in particular, were not executed by fanatics or sociopaths, but rather by ordinary people who accepted the premises of their state and therefore participated with the view that their actions were normal.
    Explaining this phenomenon, Edward S. Herman has emphasized the importance of "normalizing the unthinkable." According to him, "doing terrible things in an organized and systematic way rests on 'normalization.' This is the process whereby ugly, degrading, murderous, and unspeakable acts become routine and are accepted as 'the way things are done.'"
    Wikipedia

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  10. Hear Hear Adam! I so agree with Claire too!

    Phil you raise a valid point.. about pets rights over human rights? I put money on it that animals have more rights than our kids who can't stand up for themselves. I don't condone animal experiments or testing at all (we have 4 cats ourselves), but at least the animals have armies of people fighting for their rights....they may not always win.. but they have an army.... who the heck fights for our kids rights... except.... us?

    Oatie's only 4 and it's been about 2 years since his official diagnosis... and already I'm annoyed at him being treated as a non person by others and I won't stand for it!

    Love Mel
    xxx

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  11. That was a great observation, Mel. There are thousands of groups working to protect the rights of animals and to advocate for the adoptions of abandoned pets. I see far fewer groups advocating for the disabled...Just read an article in the Globe and Mail (sounds Canadian) and a study done in Ontario, 53% of kids there with disabilities have NO friends...pets have friends. WTF is wrong with people. We still need to keep speaking out...thanks. Here's the article:

    http://www.theglobeandmail.com/life/health/new-health/andre-picard/dont-shut-disabled-kids-out-of-society/article2319759/

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  12. Thank you for bearing your soul about the deep impact of your rational and emotional response to the question raised about personhood and the severely disabled. Of course, understanding only comes through experience. I will share the link on Amber's blog to provide a balance which was missing.

    Gwen Paltrey
    Northampton, UK

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